An unexpected “gift of life” was provided by technology to a 44-year-old mother with vision problems. She managed to “see” her unborn baby through the sense of touch. The new type of ultrasound has a relief form and even combines Braille writing, so blind mothers can experience this milestone in their pregnancy.
Karen Tripp passes her fingers over the relief ultrasound of her baby. Unlike her previous pregnancy, this time she is able to feel all the characteristics of the fetus she is carrying.
Born with a rare eye condition, 44-year-old Karen from England never believed she could experience this touching moment for all future mothers.
“When I was pregnant ten years ago, it was very difficult. Ultrasounds were not a pleasant experience. Because the staff didn’t have the time to explain it to me,” she said.
In the 8th month of her pregnancy, technology, as well as her doctor, gave her the unique “gift” of feeling the image of her unborn baby, beyond just hearing its heartbeat.
Photos of Karen’s baby are included in the “Invisible World” exhibition, hosted for a few days in London, featuring a series of photographs taken by world-renowned photographers, some of whom also have vision problems.
Visitors will thus be able to have a unique tactile experience, designed entirely for people with little or no vision, including relief prints, audio descriptions, and incorporating Braille code.
“Increase of 115% in kidney patients undergoing dialysis,” says the Nephrological Society – On the occasion of the second Thursday of March, which has been established globally as World Kidney Day.
An increase of 115% in the number of our fellow citizens undergoing hemodialysis and peritoneal dialysis is observed in our country during this period, according to the Nephrological Society of Cyprus.
In a statement issued on the occasion of the second Thursday of March, which is globally established as World Kidney Day, the Nephrological Society reports that kidney health problems are the 10th leading cause of mortality worldwide, while 1 in 10 people worldwide is affected by chronic kidney disease (CKD), and it is estimated that this number will continue to increase over time.
It is noted that even if only a small percentage of these individuals will require support through methods such as dialysis – such as hemodialysis – or kidney transplantation, in our country, these individuals amount to over 200 per year, a rate of inclusion that remains among the two highest in Europe over the past 10 years.
These rates are almost double the average for Europe and other Mediterranean countries, so “we observe an increase of 115% in the number of our fellow citizens undergoing hemodialysis and peritoneal dialysis in our country during this period. This continuous and prolonged increase in patients with serious kidney health problems is accompanied by a significant economic burden on the healthcare system, which, combined with inadequate planning and timely and proper management of CKD in its initial stages, has led to many shortages in specialized medical and nursing staff, areas that also face shortages globally.”
The message of this year’s World Kidney Day, “Kidney Health for Everyone Everywhere,” becomes even more important, it is noted. With the implementation of the General Healthcare System (GHS), it is added, access to healthcare services, both personal and specialist doctors, has become much easier for most residents of our island.
As stated, with more frequent and regular health checks, our primary goal of combating and timely addressing CKD, as well as other significant diseases that feed it – such as Diabetes Mellitus and Arterial Hypertension – becomes more feasible.
“A simple blood analysis to assess kidney function and glucose, a general urine examination to check for the presence of leukocytes (or albumin) or other signs of kidney damage, as well as blood pressure monitoring are often sufficient for the timely diagnosis and treatment of these diseases. As Diabetes Mellitus and Arterial Hypertension are contributory factors to the progression of CKD and affect more than 50% of the patients who are undergoing extrarenal dialysis therapies, it is also important to combat obesity and excessive salt consumption,” it is added.
In combination with what has already been implemented, the Nephrological Society of Cyprus (NSC) promotes and closely collaborates with the Health Insurance Organization (HIO) to adapt to Cypriot data and implement the guidance of the British National Institute of Clinical Excellence (NICE) for the diagnosis and management of CKD.
This process, it is noted, is now at an advanced stage, and we have already committed as a scientific body to contribute to the training and education of healthcare professionals for their correct use and implementation. We also promote the integration of new drugs into the GHS, whose effectiveness in treating CKD is supported by numerous serious and large clinical studies. The evaluation process of these drugs, it is reported, by the HIO and the Drug Advisory Committee has already begun.
Finally, for those patients reaching the final stage of CKD, it is noted that kidney transplantation offers the best clinical outcomes as well as better survival and quality of life.
Could the health of the eyes be related to the functioning of the intestine? A recent study reveals a unique correlation and the role played by the gut microbiota
Recent findings create hope that antibiotics could potentially treat certain genetic diseases that can lead to blindness.
For genetic eye conditions that lead to blindness, according to a recent study published in Cell, bacteria that escape from the intestine and “travel” to the retina may also be implicated. Until recently, specialists estimated that the eyes are usually protected by a layer of tissue that bacteria cannot penetrate. Therefore, these results are “unexpected” according to Dr. Martin Kriegel, a microbiome researcher at the University of Münster in Germany, who was not involved in the study. “This is a major shift in the paradigm we knew until now,” he adds.
Inherited diseases of the retina, such as retinitis pigmentosa, affect about 5.5 million people worldwide. Mutations in the Crumbs homolog 1 (CRB1) gene are the primary cause of these diseases, some of which lead to blindness. Previous studies have shown that bacteria are not as rare in the eyes as ophthalmologists previously believed, leading the authors of the study to wonder if bacteria cause diseases of the retina, says co-author Dr. Richard Lee, an ophthalmologist then at University College London.
As Dr. Lee and his colleagues found, mutations in CRB1 weaken the bonds between the cells lining the intestine, in addition to the role they have long observed in weakening the protective barrier around the eye. This conclusion prompted the study’s co-author, Dr. Lai Wei, an ophthalmologist at Guangzhou Medical University in China, to create mice with CRB1 mutations with reduced levels of intestinal bacteria. These mice did not show signs of distortion of the cellular layers in the retina, unlike those with typical gut flora.
Independence and accessibility. That’s what Damien Handlan, a resident of DeSoto, Missouri, is asking for. After a bone infection in 2015 led to the amputation of his leg, he became confined to a wheelchair.
He never felt disabled himself. Only when he was forced to go onto the road because there was no sidewalk, and even received a warning from a local police officer.
“He stopped in front of me, essentially blocking my path. He got out of the car and came to tell me that I couldn’t be on the road. I told him there was no sidewalk,” says Damien Handlan.
The warning says he wasn’t moving with traffic, but he argues it would have been more dangerous to cross the road. “I could have been killed. You say you care about my safety and life. Then do something about it,” adds Damien, saying, “I don’t need you to pay for the rest of my life. I just want a sidewalk.”
A new robotic exoskeleton could allow individuals who have lost the ability to move their legs to stand up and even walk again. It can also help them walk independently, guiding their movements and keeping them upright as they participate in rehabilitation therapy.
Named Twin, the exoskeleton designed in Italy for the lower body was presented at the Museum of Science and Technology in Milan. It is still in the prototype stage and is being developed by scientists from the Istituto Italiano di Tecnologia (Italian Institute of Technology) and the Istituto Nazionale Assicurazione Infortuni sul Lavoro (National Institute for Insurance against Accidents at Work).
Designed for use by patients with reduced or absent mobility in the lower body, it moves their legs through motors located at the knee and hip joints. These motors are powered by an integrated battery, which is said to last for about four hours of use per one hour of charging. The Twin can be used in three different operating modes.
In Walk mode, intended for individuals who cannot use their legs at all, the exoskeleton moves the user’s legs on their behalf and assists them in sitting and standing up. The person still needs to use crutches for balance, as with other assistive exoskeletons.
Retrain mode is for patients who still have some mobility in their lower limbs. It allows them to walk on their own to the extent they can, but provides adjustable assistance when needed. Throughout the process, the exoskeleton guides them towards a predetermined optimal trajectory of leg movement.
Finally, there is TwinCare mode, intended for individuals who have full use of one leg but not the other. In this case, the exoskeleton enhances the movement of the affected leg to match that of the healthy leg. In all three modes, a physiotherapist or the user themselves can adjust walking parameters, such as step length/type and walking speed, using a wirelessly connected Android tablet.
According to its designers, two things that make Twin stand out from similar exoskeletons are the fact that it is made from lightweight materials – aluminum alloy instead of steel, for example – and that it features an articulated design allowing for the removal of components for transport or upgrade.
It can occur at any age. Audiologists share the red “lines” that urgently signal that we should check our ears as soon as possible
While we often believe that hearing loss is something that only happens to much older people, this is not actually true.
According to the National Institute on Deafness and Other Communication Disorders (NIDCD) in the United States, 1 in 8 people aged 12 and older has hearing loss in both ears, and approximately 28.8 million adults in the US could benefit from hearing aids. While difficulty in hearing may be the most obvious sign that we need to check our ears, it is not the only one.
We asked audiologists to share the main signs that it’s time to check our hearing. Here’s what they had to say:
Number 1: We struggle to follow conversations.
If we constantly find ourselves saying “what?” during conversations, it’s probably time to check our ears.
“Terry Zwolan, director of Audiology Access & Standard of Care for Cochlear Americas, says, ‘Making an effort to listen when we talk to others or to continue a conversation is very important. This may include struggling to hear when there is background noise and regularly asking people to repeat what they have said or often mishearing.'”
Number 2: We need to increase the volume of the sound on the television.
Whether others regularly tell us to turn down the volume of the television or we are surprised by the number we see on the volume control, this can be a sign that it’s time to check our hearing.
“We may find ourselves turning up the volume on the television or radio to a level louder than others prefer, or feel that people are mumbling (because of it),” he says.
Number 3: Our ears are ringing.
While ringing in the ears (or tinnitus) isn’t always a sign of hearing loss, it certainly can be at times. “Some people may experience persistent ‘ringing,’ buzzing, pain, or pressure in one or both ears,” says Zvolan. “Also, difficulties hearing from one ear may arise, it may be challenging to distinguish where sounds are coming from, or our own voice may sound different.”
Katie Campbell, an audiologist and Senior Director of Audiology at HearingLife Canada, emphasizes that experiencing symptoms like ringing in the ears is a good reason to consider getting a hearing test. “Ringing in the ears, or tinnitus, is usually associated with situations of hearing loss,” she states. “If it persists for an extended period, it’s a good idea to arrange for a hearing test.”
Number 4: We may struggle to hear the sounds of nature.
If we suddenly find it difficult to hear the sounds of nature, such as birds chirping or rainfall, this could be a red flag, according to Zvolan.
People with disabilities are more vulnerable to abusive behavior from their surroundings and even from their own families. This happens due to their difference. And because some countries do not consider these individuals reproductive due to their illness. Therefore, they are not considered functional to contribute to a job. The violence they experience is increasing, especially in women with disabilities. One form of violence they experience is compulsory sterilization.
According to the European Disability Forum (EDF), governments in thirteen member states of the European Union implement compulsory sterilization on women with disabilities. This is another form of violence experienced by these women. Among these thirteen member states where compulsory sterilization of people with disabilities is legal are Portugal, Finland, Bulgaria, Croatia, Malta, Czech Republic, Cyprus, Denmark, Estonia, Hungary, Latvia, Lithuania, and Slovakia.
The justifications for implementing this practice vary. For example, in 2015, a court in Croatia allowed compulsory sterilization. They sterilized a woman with psychosocial disabilities, arguing that her frequent pregnancies endangered her life. In reality, compulsory sterilization is what harms the health of these women. However, in Spain, compulsory sterilization has not stopped, especially for women with intellectual or psychosocial disorders.
Legislative framework in Greece
Regarding Greece, according to the European Disability Forum, there is no clear data on the percentage of women who have been forced to undergo sterilization. However, there are some recorded cases from 2022. In these records, three women with intellectual disabilities underwent compulsory sterilization with the consent of their guardians. There is also a recent complaint from the Cypriot Federation of Organizations of Disabled People. Specifically, a woman with intellectual disabilities was sterilized after giving birth to prevent her from giving birth again in the future
This issue has been brought to the attention of the Greek Parliament. Because it is a very delicate issue, a legislative framework must be established. This framework will cover the needs and rights of people with disabilities. The President of the Parliamentary Committee on Human Rights explained that special attention must be paid to the issue and the legislative framework surrounding it. Because there is involvement of others, as in some member states of the European Union where people with disabilities need approval for sterilization from their guardians.
European Union legislators are trying to put a stop to compulsory sterilization. The problem that arises is an ethical issue. To what extent should the guardians of people with disabilities determine whether they should be sterilized or not.
Sources:
Chatziapostolou, Panagiotis. (2023). “Middle Ages” for People with Disabilities: The Law that Renders Them Nonexistent and How It Will Change. Retrieved from https://app.alphanews.live/cyprus/mesaionas-gia-amea-o-nomo.
Unknown author. (2023). EDF: Europe Continues Compulsory Sterilization of Women with Disabilities. Retrieved from https://www.reporter.gr/Oles-oi-eidhseis/586370-ESAmeA-H.
Mytaras, Evangelos. (2022). Policies for Women with Disabilities at European and National Level. Retrieved from https://www.eoty.gr/politikes-gia-tis-gynaikes-me-anapiria-se-ev.
Parthenidis, Kyriakos. (2018). Sterilization Program for Remuneration and Ethical Extensions. Retrieved from https://www.maxmag.gr/politismos/koinonia/programma-prolipsi.
Respecting the rights of people with disabilities starts with each one of us, and primarily with the state itself. The Convention on the Rights of Persons with Disabilities, among other things, addresses the issue of accessibility. While the word “accessibility” usually brings to mind sidewalks, ramps, etc., these days, our thoughts turn to polling stations and voting booths.
Respect for persons with disabilities entails measures that allow every citizen to participate unhindered in electoral procedures. However, while in other countries there is the possibility of electronic voting, exercising the right using sign language, and ballots in Braille, in Cyprus we are far behind in this regard!
By Konstantinos Zachariou
Significant obstacles must be overcome by people with disabilities in order to exercise their voting rights, as the state limits itself to very basic provisions regarding the necessary accommodations for ensuring equal access for all citizens. In contrast, other EU countries provide significant facilitations, as evidenced by a report prepared by the relevant service of the European Parliament.
More specifically, in Cyprus, the physical presence of the voter at the designated polling station, determined by the competent state authority based on their residential address, is required. In contrast, in many EU countries, other options are available (either to all citizens or specifically targeted at people with disabilities), such as postal voting, the possibility of exercising voting rights in advance, voting by proxy, and electronic voting.
Additionally, the only tools utilized in Cyprus, which can be considered as supportive for people with disabilities, are those applicable to all voters: large print ballot papers, easy access to polling stations, and the freedom to choose the assistance needed by each individual.
In other countries, many more tools are utilized to provide assistance to people with disabilities, such as different standards for printing ballot papers depending on the type of disability, the use of magnifying lenses, ensuring adequate lighting, audio description of the ballot, the option to use sign language, printing of ballot papers in Braille, exercising the electoral right through mobile units, and the choice of a different polling center from the one designated by the competent government agency.
What applies in other countries
The accommodations provided to people with disabilities in other countries are as follows:
Lithuania: There is the option of postal voting, as well as the possibility of exercising the voting right in advance. Additionally, tools are provided such as using different ballot templates depending on the type of disability, using magnifying lenses, audio description of the ballot, using sign language, and exercising the voting right in mobile units that come to the voter’s location.
Belgium: There is the option of postal voting and proxy voting, as well as tools for using different ballot templates and magnifying lenses, and audio description of the ballot.
Spain: There is the option of postal voting. Additionally, tools are provided for using different templates and magnifying lenses, audio description of the ballot, using sign language, and using ballots in Braille.
Ireland: Tools are provided for using different templates, using Braille ballots, and voting in mobile units.
Netherlands: There is the option for proxy voting. Additionally, tools are provided for using magnifying lenses and sign language.
Estonia: There is the option of electronic voting, as well as advance voting. Additionally, tools are provided for using magnifying lenses and sign language, as well as voting in mobile units.
Croatia: Tools are provided for using different templates depending on the type of disability, audio description of the ballot, using sign language, and voting in mobile units.
Hungary: There is the option of postal voting. Additionally, tools are provided for using different ballot templates, using Braille ballots, and voting in mobile units.
Luxembourg: There is the option of postal voting. Additionally, tools are provided for using different templates, audio description of the ballot, using Braille ballots, and voting in mobile units.
Slovenia: There is the option of postal voting and advance voting. Additionally, tools are provided for using different templates and voting in mobile units.
Austria: There is the option of postal voting. Additionally, tools are provided for using different templates and voting in mobile units.
Germany: There is the option of postal voting. Additionally, tools are provided for using different templates, using sign language, and choosing a polling station.
Denmark: There is the option of advance voting. Additionally, tools are provided for using magnifying lenses and voting in mobile units.
Finland: There is the option of postal voting and advance voting. Additionally, tools are provided for using different templates depending on the type of disability, using magnifying lenses, and voting in mobile units.
Czech Republic: Tools are provided for audio description of the ballot and voting in mobile units.
France: There is the option of postal voting, proxy voting, internet voting, and audio description of the ballot.
Latvia: Tools are provided for audio description of the ballot and voting in mobile units.
Poland: There is the option of postal voting, proxy voting, and using different templates.
Portugal: There is the option of proxy voting. Additionally, tools are provided for using different templates, using Braille ballots, and voting in mobile units.
Sweden: There is the option of postal voting and proxy voting. Additionally, tools are provided for using magnifying lenses, using Braille ballots, and voting in mobile units.
Bulgaria: The option of voting in mobile units is available.
Italy: The option of voting in mobile units is available.
Malta: There is the option of advance voting. Additionally, tools are provided for using different templates and using Braille ballots.
Romania: There is the option of postal voting and voting in mobile units.
Slovakia: The option of voting in mobile units is available.
Greece: There is no option other than physical presence, and the only tools provided for people with disabilities are the minimum requirements applicable in all countries, concerning easy access to polling stations and booths. It is the only country, along with Cyprus, where almost no facilitation is provided for people with disabilities to exercise their voting rights.
The Holiday Subsidy Scheme for People with Disabilities, approved by the Council of Ministers on 10/05/2022, for vacations to be taken within 2024, will operate for 2024, according to the Department of Social Integration of Persons with Disabilities (DSIPD).
According to the department’s announcement, the application submission will start from March 11, 2024, and will last until November 30, 2024, or until the fund for this Scheme is exhausted.
Interested parties can obtain the guide of the Holiday Subsidy Scheme for People with Disabilities as well as the application form from the department’s website: www.dmsw.gov.cy/dsid and from the Assessment Centers for Disabilities of the DSIPD: in Nicosia, Archbishop Makarios III Avenue 67, 2220 Latsia, in Limassol, Apostolou Andrea 11, Hyper Tower, Shop 1, 4007 Mesa Geitonia, and in Larnaca, Akropoleos 25 & Chaniwn, 7000 Menoú. They can also get them from Citizen Service Centers in all cities.
“It is the responsibility of beneficiaries to ensure that hotels/tourist accommodations are approved by the Deputy Ministry of Tourism and that they charge the usual fees for the period. The Department will conduct checks in case of significant deviation from the usual charging rates for the period and will adjust the payment amount accordingly,” it is added.
No payment will be made to a bank account other than that of the direct beneficiary or their guardians in the case of a minor beneficiary.
For more information, interested parties can contact, depending on their province of residence, the following contact numbers: 22815015/082 for the Nicosia Province, 25729131 for the Limassol and Paphos Provinces, and 24205975 for the Larnaca and Famagusta Provinces.
In today’s episode of “When Life Gives You Lemons,” I host champion para-triathlete Katerina Saranti, who was born with a partial development of both tibias, as during embryonic development, her legs developed incompletely from the knees down. From infancy until the age of 18, she underwent dozens of surgical procedures.
Katerina Saranti was born and raised in Rhodes, Greece, and from a young age, she had a passion for sports. In school, a gym teacher advised her to get exempt from Physical Education classes because it would lower her overall grade average. At the age of 17, after a trip to Finland, she realized that she could participate in any sport she wanted, just like everyone else.
Today, she is studying Medicine and is a champion para-triathlete. She dreams of a world and a Greece with facilities and accessibility for people with disabilities, just like in major European cities.
Katerina Saranti: “Going out on the streets in Greece with a wheelchair is a Golgotha with obstacles.”
How should people refer to her and to other people with disabilities?
“Many people perceive our rights as a luxury; it is the obligation of a state of equality to provide them to us.”
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